Saturday, March 30, 2013

It's been a VERY long time since I've made a post in here! I'm still around! :-) My life has changed drastically I went off my RA medications last year to TTC & I now have an amazing healthy 9 month old baby boy. His Name Is Hunter.

He is my world! He was born with Neonatal Lupus, just the rash. As soon as he turned 6 months and his own antibodies took over the rash went away! This was rare though, they said it only happens to about 1%.. and increases with future children.. we do plan on having more children in the future though so praying they will all turn out healthy like this little guy did! 

My RA went away in my third trimester, so it was a tough pregnancy.

I have received lots of emails & I'm sorry I didn't have time to respond, life has just been so so busy! I havent seen a rheumatologist in over a year now and am actually going to see one on friday. I am currently only on predisone and a anti inflammatory. So i'm looking forward to starting Enbrel again. Other then that just enjoying my time being a mama! 

Monday, May 23, 2011


I got shingles :( noticed the night before yesterday, All on my left side of my back and it hurts so much!! It all started with my left side of my body hurting when it was touched even with clothes on! It felt like a sunburn but wasnt. This is by far the worst thing ive experienced. Ughhhh, i just want this rash to go away!!!

Saturday, May 7, 2011

Avail Clinical

I will be doing guests blogs over on a website called Avail Clinical & my first article is now up! If you're interested in reading about my early experiences when I first go diagnosed go ahead and check it out. Just follow the link below.

I Am RA and I Am Here

I will be putting up hopefully at least 1 a week.

Monday, April 4, 2011

Ganoderma ?

I know it's been a long time since my last post but a woman at work who knows about my RA came to me yesterday with this tea, "Organic Green Tea with ganoderma lucidum" what is that? Well she said to take some time and do some research but that this Chinese herb may help me. So here in front of me I have 6 packets of tea to try. I am starting today. I googled the term and it said that this is a type of mushroom, and it is used in chinese medicine. I'm willing to try anything that's alternative. So I narrowed my search to Rheumatoid Arthritis and Ganoderma and found some interesting things!!

follow these links:


& this one person's blog:

facebook for this person:

I want to here opinions, would you all try this? have you already tried this?

I need to make a rheumy appointment and see if he's heard of this herb.

Thursday, January 13, 2011

New Pharmacy

I just need to vent. As you know if you've been reading I had to switch insurances on december 1st, I was no longer able to be carried on my dads. So I was able to get it from my work. I received all my info and card etc but found out that I had to use a different pharmacy for Enbrel to be delivered. This meant I needed to get a new pre auth and a new prescription faxed to them once approved. OK so that took time, this new pharmacy said they received it yesterday, cool they have all the info so I asked to schedule a delivery. Well this idiot woman on the phone was telling me how it needs to be "processed still" and they need to wait for whatever reasons 9 days WTF? I told her to make it urgent because I only have 1 shot left that I take today so I need more by next thursday. This just really frustrates me, I hate how insurance companies have no problem taking your damn money but when it comes to getting medications it can be such a freaking hassle. It just drives me nuts, and going through all this is just a reminder of how much i HATE having RA. I just hate it so much. & I'm feeling depressed now.


Saturday, January 1, 2011

New Year!

Happy New Year everyone, hope you all had a wonderful holiday season! Any new years resolutions? I haven't really ever had one, but this year i'm committed to taking 1 photo every day for 365 days, so if any of you are interested in following that adventure I made my first post today that can be found here :)

RA Update: Still working on the new insurance issue for Enbrel, I need another pre auth to get it started again and i'm hoping it's all settled within the next two weeks cause i only have two shots left.. yikes!

Tuesday, December 21, 2010

An iPad update

Posting from my new iPad I got for Christmas from my grandma god it's seriously great!!! I was able to view everyones blogs beautifully over an app call flipboard it's so nice and useful. My RA has been acting up lately so instead of codeine I smoked marijuana yesterday once and today, it really does help I'm never in pain after but I don't like to do it often cause sometimes it does make me feel weird but it didn't yesterday or today :) so that's good. I have to work 7:15 to 12am tonight I really wish I didn't have too :( standing on my feet a few days ago hurt so bad I had to call out the next day I couldn't move. So I will probably try to update more 2011 that's one of my new years resolution. Hope everyone has a pain free Christmas on Saturday!